Doesn’t interferon beta look like it is throwing a party?
Epic blowout in Elys’s brain! Everyone’s invited!
I never really gave much thought to the medication I took. I
always had Advil on hand to quell my occasional headaches. My first aid stash
contained children’s Tylenol, some antibiotic ointment, and a big bottle of
antacid.
Things have changed.
The amount of medication that has entered my life in the
last few months is staggering. Here is an accurate recreation of what my
medicine cabinet looked like before the diagnosis.
This is what it looks like now.
And this doesn’t include the Avonex, which is stored in the
fridge.
I’ve had to become one of those people with the little case
that holds all my pills for the day. Mine is purple and has the day of the week
printed on the top of the tiny compartment. You know what I’m talking about.
The kind your grandma had.
I do not want to get muddled in politics. I’m not going to
write about my views on Syria or my opinion about gay marriage. If I want to do
that, I will do it on another blog. I am not trying to push any agenda. But I
do want to point out this: If you have ever wondered why Obamacare is
important, it’s because of me.
I am the person that is benefitted by Obamacare. I know the
plan isn’t perfect. I know that some people think it is bad policy. I think
some of it is not correct. But when I got my MS diagnosis, it became essential
to my health and wellbeing.
I now have a “pre-existing condition.” Before the Patient
Protection and Affordable Care Act, I would—as of April of this year—be
uninsurable. To be fair, I am covered, and covered well, by my generous company
insurance plan. But if I was not employed, I would be completely screwed. Not
only would I be saddled by a chronic condition that needs quite a bit of care, I
would have to figure out how to pay for my meds. I am taking one of the most
expensive prescription pharmaceuticals on the market today.
Which brings me to the other thing Obamacare has done for
me. It eliminated the annual and lifetime spending limits that most insurance
companies used to cap the spending on an individual. In these last few months,
I have racked up the healthcare spending: MRIs, blood tests, visiting several
different doctors, IV steroid therapy. And lest we forget, all those
prescriptions. I would be hitting my head on that spending cap, and there is
still a quarter of this year to go.
The last thing I need to be doing is hitting my head. Well, except when wearing a helmet and taking down a jammer.
there isn't a day goes by that i don't thank God for the UK National Health Service - for my MS treatments and support, for the care which my 92 yr old Grandma is receiving currently following a stroke, and for the support my wife received when giving birth to our daughter.
ReplyDeletei certainly wouldn't have been able to afford Rebif at these prices - http://www.brassandivory.org/2011/03/rising-price-of-ms-disease-modifying.html - ouch!
not gloating - the current goverment is trying its damnedest to dismantle the NHS in the name of 'competition'!
you may not want to get muddied in politics on here (and that's your right obviously) but the older i get the more i realise that EVERYTHING is political - and also being a grown-up is WAY overated!
really interesting blog - thanks!