Here is everything you ever wanted to know about MS, but were too polite to ask.
Multiple sclerosis is a disease that affects the central
nervous system. Much like the plastic cover that houses an electrical wire, the myelin of our nervous system—the brain, spinal cord, and optic nerve—covers and protects our nerves and channels electricity to the correct place in the body. Essentially, my myelin is being attacked by my own
immune systems. Traitorous scoundrels. Wretched hive of scum and villainy. All
I wanted do was pick up some power converters.
Sorry, I geeked out for a moment.
Anyway, the demyelination leaves scars, often referred to as plaques or lesions. These lesions
are dotted throughout my brain. You can see a couple of them in my MRI image below.
What’s that you say? My brain looks so sexy? Oh, go on, you
flatterer. Those little white dots are the lesions. Incredibly, this scatter shot
of lesions has avoided a lot of important brain parts. Much like
Dick Cheney quail hunting. The MS buckshot missed the quail and only hit some minor
right-wing attorneys.
Scientists don’t know what causes this in my particular
nervous system. They don’t know how to cure it. But here are some of the things
that doctors think may have accelerated the progression in me. These are things
you can do for yourself to help your myelin last your whole life. And even if
you have the myelin of Wonder Woman, you should do these things anyway.
Get more Vitamin D. If we had our levels checked, most of us
would find that we are Vitamin D deficient.
Part of the blame for this falls at the feet of our dermatologists, who
are forcing us out of the sunlight for the sake of healthy, cancer-free skin.
The sun is a major source of Vitamin D. And while this freckle-faced redhead is
more than happy to sit in the shade, wearing a very large hat, I have to
supplement my D. I take a capsule every morning. I now buy fortified milk and
orange juice. I try to eat more leafy greens. You won’t find me getting rickets
like some sailor of yore. Now you know the secret of why Popeye ate so much
spinach. Well blow me down! Toot toot
Stop smoking. I know, I know… Hey pot! Meet kettle! Smoking
has been linked to accelerating MS symptoms. I smoked in college and for a few
years after. I quit for a while, and picked up the habit again after I got
divorced. I’ve quit for good now. But I will freely admit, I quit because I had
to. Dr. Sister (that would be my sister that is a doctor) would kill me
herself if I didn’t. I wish I could unsmoke every cigarette I sucked down. I
also wish I could go back and work for Google circa 1999. I can’t do either. I
miss smoking. I really do. On the other hand, how would I ever hope to do 27
laps around the skate track in under five minutes if I was still smoking?
Relax. I mean that literally. Try to de-stress. Extreme
stress can not only worsen symptoms of MS, some science-y types think it might
actually increase the risk of developing it.
I also mean… relax. There are some things you can do to MAYBE
stave off this stupid disease. But it seems like it may have an element of the
random to it. So why worry about it? Do what you can to be as healthy as you
can. Wear your seat belt, eat more salad, smell the flowers. Other than that,
we are all kind of along for the ride.
MS is not a death sentence. It’s a life sentence. But I
won’t do hard Andy Dufresne time in solitary. It will be more like Martha
Stewart prison: hanging with lots of interesting, tough, smart women who
occasionally hit each other, then crochet a scarf. MS isn’t fatal, a common
misperception. It is, however, something I will be managing for the rest of my
life. And I will manage the shit out of it.
I might need a wheelchair someday, but until then I plan to
be on eight wheels—not four.
I laughed out loud at the Cheney comment! Right when I was about to cry as you described MS. Laughter in the midst of tears, that's one of my favorites. Thank you for that. :)
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