I’m a Googler. When Dr. Sister was first talking to me about
my MS diagnosis, one of the things that she told me to do was to stay off the
Internet. This is why:
Here are the first few headlines on my Google news alert for
Multiple Sclerosis. (Yes, I did stay off the Internet. For a good 45 to 50
minutes.)
How Will the
Obamacare Out-of-Pocket Cap Delay Affect MS Patients?
Studies have shown that MS has one of the highest associated
out-of-pocket expenditures. So this delay means that many MS patients will have
to wait another 1-2 years before they see any financial relief or benefit. I am
very, very lucky to have great health insurance provided by my employer.
Without insurance, my weekly shot would cost me $37,544 a year.
New Study Casts Doubt
on CCSVI as the Cause of Multiple Sclerosis
I’m not sure what this story means, except that scientists
know a lot about what doesn’t cause MS.
FDA Probes Rare Brain
Infection In Patient On Multiple Sclerosis Drug Gilenya
Because there wasn’t enough to worry about.
Then there is this:
Hey Sharon, I know you love your son. And People magazine cover editors, I know you want to sell magazines. But maybe we shouldn’t
be perpetuating the myth that MS is fatal. I mean, no more than life is fatal.
Wait, maybe Sharon meant she was going to turn Jack into a vampire? I smell some fan fiction!
And this:
Hey, who doesn’t deal with it like that? I know that my
equestrian therapy not only eases my symptoms, it boosts the economy by
employing my stable mucker. And my lawn has never been greener with all that
horse shit. What's that you say Fox News? If we talk about Ann's horses, no one will notice Mitt's politics?
And don’t you love this one?
This was referenced on an MS support website. Doctor Death, the euthanasia guy. On a website about how to support people with MS. Really.
Even my beloved Amazon can betray me. Here is one of their
top suggestions for reading up on MS.
Who knew it was that easy to overcome this? What the hell
have I been bitching about? The secret to recovery can be found in these pages,
and it can be yours for $18.75.
Yeah. Stay off the Internet. Well, except to read my blog.
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